Welcome to My Personal Page
May 17, 2013
When Justine was born, my wife and I expected to do the usual parent thing. We would stay in the hospital a couple of days while my wife recovered, and then we would go home to Buffalo Grove as a family a few days after the birth. We would go home not having any idea what to do with a newborn, get zero sleep, and love every minute of it. Unfortunately, that was not our story.
Hours later she would suffer from her first seizure which she then would continue to have every day. For the next 47 days between two hospitals, we talked with nurses and doctors, had every test administered: blood, cat scan, MRI, EEG, lumbar puncture, everything to try and figure what was wrong with our newborn daughter.
The first night at Lurie’s, a social worker approached us to speak about Justine and her situation. She offered us a sleep room a floor under the NICU so we Jaz and I could sleep and still be nearby. In all the craziness of the transport, it never dawned on me that I would have to go home at some point and sleep. For the next week, we stayed in the sleep room in the hospital, but it became pretty clear that we would be staying for an extended period of time as doctors and nurses tried to come up with a solution to Justine’s seizures. The sleep room is really for short-term cases and we were no longer considered short-term. They then offered that we stay at the Ronald McDonald House which was only 4 blocks away that could be easily walked, or a shuttle will come get you at ANY time of the day.
After 47 days in the NICU, Justine finally came home. We loaded up the car with all of the things we had in the Ronald McDonald House, took Justine out of the hospital for the very first time, and drove back to Buffalo Grove. Finally, when we got home, we had no idea what we were going to do with this 1 ½ month old baby, we got zero sleep, but with all three of us finally together, we were finally HOME. And we loved every minute of it.
We cannot thank the Ronald McDonald House enough for keeping our family together while we were trying to figure out how we can help Justine. We are just one story with a happy ending where we brought our child home. Unfortunately there are other families who did not get our same ending. The Ronald McDonald House has given those families precious minutes and hours to stay with their child. This organization continues to share its compassion with families just like mine to make sure we are there for our children.
Chicago Marathon 2019
On October 13th, I will be representing Ronald McDonald House Charities (RMHC) at the 2018 Bank of America Chicago Marathon! As a member of Team RMHC, I will be training, fundraising and ultimately running 26.2 miles to help keep families together.
Did you know $25 can provide dinner for a family and $80 can give a family a room for a night? Your donation, of any amount, will not only help me achieve my goal, but will help children stay close to their families when they need it most!